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NEWS: Website will collate NHS data research

A new website will enable public monitoring of practice data released for research purposes by NHS Digital, it has been announced.

The NHS Digital Register has been launched in a bid to alleviate concerns about plans for a nationwide upload of data from GP practices. The upload was delayed until the autumn amid concerns about public understanding and consent for the upload – and new safeguards have been promised to protect patient data. NHS Digital said the new register would enable those with concerns to check the uses for which data is being applied.

Chief executive Simon Bolton said: “The new Data Uses Register is an important improvement to make our data sharing agreements more transparent and user-friendly. We take our responsibility as the guardians of NHS data very seriously and we are committed to being transparent so that people can see exactly who their data has been shared with and why.

“It is important that the public can see openly and clearly how NHS data is shared to build confidence and trust and this new tool will help to ensure that.”

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